Mic Drop Responses to Invalidation
If you have a rare, chronic or invisible diagnosis then you have probably had to explain your medical condition to a stranger. You have most likely experienced the wide-eyed pity,
Should You Tell Your Employer About Your UCD?
As a working adult with a UCD, you will face the challenge of having to decide whether or not to tell your employer about your UCD. This is a highly
A Rare UCD Dad’s Perspective
Finding out you have a child with a rare disease and figuring out how to deal with it is a scary process. And the worst part of that process is
Calling All Campers – by Lynzi Russell
Growing up with Urea Cycle Disorder, diagnosed in the late ‘90’s, I thought I was the only person on the face of the planet with this strange rare disease. Believing
DIET – by Amy Englert
My biggest personal struggle as a patient with OTC is my diet. My goal is to eat 45 grams of protein a day. I almost never make 45 grams but