Mic Drop Responses to Invalidation If you have a rare, chronic or invisible diagnosis then Read More » July 9, 2020
Should You Tell Your Employer About Your UCD? As a working adult with a UCD, you will face Read More » July 9, 2020
A Rare UCD Dad’s Perspective Finding out you have a child with a rare disease Read More » July 9, 2020
Calling All Campers – by Lynzi Russell Growing up with Urea Cycle Disorder, diagnosed in the late Read More » April 9, 2020
DIET – by Amy Englert My biggest personal struggle as a patient with OTC is Read More » April 9, 2020